Jacob and I arrived at NIH Building 10 Clinical Center this afternoon at 3:00. After paperwork in Admissions we were taken to Jacob's room in the Inpatient NW Day Hospital. Jacob was put in a semi private room without a roommate. Our nurses have been very nice, but it was upsetting that even though Jacob was on the surgery schedule there weren't any orders in for him and they weren't sure who the "primary" team is for J's surgery tomorrow. I won't go into details about that because it was a three hour ordeal. Getting J's port accessed was unpleasant for Jacob but I can save that for another time also. The theme for this afternoon could have been, according to the nurses, " this has never happened.". Typical for us it seems.
Dr. Asthagiri came and saw Jacob. He wasn't the doctor on call for neuro, but he still came to see how Jacob was doing. We saw a doctor from endocrinology and another doctor from neuro surgery. They both wrote on Jacob's surgery spots with a permanent ink pen. He's sporting their initials on his right foot and right side.
Jacob can order any food from 6:30 am to 6:30 pm and tonight he took advantage of the room service. He ordered a pepperoni panini, chicken fingers, Mac and Cheese, yogurt, apples, oranges, grapes, chocolate ice cream, a Pepsi, and a Gatorade. He said it was all yummy. He also ate brownies and cookies from the Children's Inn dinner.
Gavin and TD came over and spent some time here with Jacob. There is a nice family room and play room.
Jacob had a chest x ray to make sure his lungs are clear for surgery. They are.
Jacob also had an EKG to make sure his heart is healthy for surgery. It is.
They will be coming in at midnight to start Jacob's fluids.
Jacob is watching his 5th episode of Gator Boys and seems calm and cool. He looks adorable in his snowflake hospital gown and FSU pajama pants.
I have loved listening to Jacob's phone blowing up with text messages and Facebook notifications of encouragement.
Thank you all for your prayers, for your time and support.
Jacob is the first case at 8:00 am and will go to pre op around 6:45 am. I will update everyone as soon as I know how Jacob is doing.