Sunday, October 27, 2013

Jacob and I arrived safely in Charlottesville, VA yesterday. Today our close friends, the Carter- Lindquist family picked us up for lunch and took us out to see Thomas Jefferson's stunning mountain top home and gardens, the Monticello. It was beautiful. Later Jacob and I took a short walk on UVA campus. Jacob was thrilled to find a Mellow Mushroom for dinner and enjoy one of his favorite pass times, pepperoni pizza and football. I was super happy to see Peyton not only on the field but rocking out the yards second half. I know TD had an awesome day in fantasy football. Yesterday watching our Noles honor Bobby and continue our winning streak was rewarding to say the least. It was a good weekend in football and overall a good weekend for Jacob. 

Tomorrow Jacob will go to neuro clinic to see Dr. A, discuss surgery and have an exam first thing. Then we go to the walk in pre anesthesia clinic. That just sounds long. Last we will meet Dr. Kesser for the first time in his clinic. He is the ENT surgeon who will be assisting in Jacob's surgery.  

Jacob is in good spirits. He did wake me up this morning at 6:00 am screaming in a nightmare but he doesn't even remember. I couldn't even wake him up. I know he is worried and scared, but he is already being so brave and pretending like he's "fine."

I can't say enough times how much I appreciate everyone's prayers, love and support. I am beyond thankful and feel so blessed to have a strong Christian foundation loving Jacob!, our family and me. Through all of our NF2 trials and life's troubles I will still scream from the mountain tops, God is good and I believe He will keep Jacob safe and give us peace and understanding. 

I continue to pray for my daddy. We are still waiting for the results from his bone marrow biopsy. We need these back so we can make a plan and be on our way to getting him better!! 

It's very small in the big picture, but my Yorkie, Grissom is sick. He's struggling to breath since yesterday. We hope the vet will have the answers for us tomorrow. I love him so much. He's been my best friend for 8 years and I really need him to be ok. 

That's all for now. I will update after our appts tomorrow. 

Peace & Love!!


  1. Will keep Jacob and you in our thoughts all feel. Lance is always asking me for Jacob updates. We just love Jacob in our family, we all are praying. Wish there was something we could do to make your week easier. Just sending lots of love and prayers!

  2. You know I have cried many tears over the nightmares & stresses & difficulties of our kids. This disease is brutal. We are so blessed with such strong kiddos. They draw their strength to continue from us. You are one string Momma & while I know you are hurting inside, you are wearing the full armor of God & He will see you through. I love you all more than words can express. Be well & remember 'this too shall pass'