The infusion lab at Arnold Palmer is very different than Shands. They have a large room with a big “Tree of Life” in the middle of the nurses’ station. It reminded me more of a children's hospital floor than a lab. Each chair has it's own room with a curtain for the front but with walls on the other three sides. Jacob's RN for the morning, was a male nurse named Scott. Scott liked the Rays and I think Jacob liked having a dude to chat with for a change. Their procedures are a bit different than Shands. Scott had Jacob wear a mask and he had on a mask, gloves and a gown to keep everything sterile while accessing Jacob's port. After Jacob had his labs drawn we took a walk down to the gift shop and went outside to play for a bit and look around. It was hot and Jacob was wanting to play Xbox so we headed back upstairs after a shot adventure. Child Life brought in a separate unit with a TV and gaming system, which was nice because Gavin could watch TV while Jacob played games. Jacob had the super nice Child Life coach hunting for a football game he wanted to play, only for him to have to trade out Jacob's controller for one that wasn't "dead" when he returned with the game. Child Life also brought Gavin a really cool tool set to play with and I loaded the boys up with snacks and drinks. The next few hours went by pretty fast. I would be lying if I said Gavin was well behaved during our wait. Not sleeping well the night before, he was grumpy and I was ready to head home.
When the Avastin arrived Scott was at lunch and another nurse hooked Jacob's meds up. She was super tall and graduated from FSU. Once again with the full-on sterile gear. We were told the Avastin protocol was for Jacob to have his vitals taken every 15 minutes. That was different too. Jacob got his meds over a 45 minute period because it had been a month since his last infusion. I signed some papers, Jacob had his port access removed and we were on our way. Jacob was dying for McDonald's so we left the hospital and made our way down South Orange Avenue until we saw one. Have you ever eaten at a McDonald's Bistro? It’s just weird if you ask me, but Jacob was very impressed with the huge saltwater fish tank, fire place (in Florida, really?), and cherry wood tables. The menu has a hundred things to chose from, but who would go to McDonalds to eat a grilled chicken pesto wrap that is most likely grilled on the same flat as a greasy Big Mac?! Not that I’m knocking the Big Mac. It’s delicious. Just saying. Jacob and Gavin and I ate the usually gut rot. After a stop at Starbucks we were on I-4 headed home. The ride home was a bit stressful for me. It poured rain most of the way and I didn't think about needing gas since the van usually makes it to Gainesville and back on a full tank. Our round trip to Orlando was four hours longer. Duh. I needed gas. Jacob rested and Gavin slept almost the entire way home. We didn't make it home in time to get Brie from school, but TD picked her up and we were all back home in our Buckingham Palace for dinner. Another city, hospital, and medical trip conquered!
Sorry the below pictures aren't great - my iPod Touch doesn't take very crisp photos.
|Sign at rest stop in the swamp|
Outside of Gainesville, FL
|MD Anderson - Right next door|
to Arnold Palmer